Cystic Fibrosis
Rare congenital disease of children.
The prerequisite for a healthy life is not to neglect
small things. A small thing can sometimes become a cause of great suffering.
When we were running to the doctor about the problem
of cerebral palsy in my sister's child, we came to know about another problem -
that is "Cystic Fibrosis". Knowing all this, we understand - how much
more we have to know to lead a healthy life!!!
The expert said - this is basically a hereditary fatal
disease of the respiratory system of children. It gradually affects various
organs. If close relatives marry, the risk of this congenital disease in
children increases.
For example - here, emotional or self-interested
issues can be mentioned. Many people marry close relatives, including cousins,
out of emotion. Again, in many families, they marry close relatives for
self-interested reasons.
This can result in problems like cystic fibrosis. It
is true that human life cannot be lived without emotions, but to lead a healthy
life, one must think scientifically while keeping emotions in mind.
If you want to know, you can learn a lot by reading
health magazines and you can also get advice from experts.
The expert said - This problem occurs due to a change
in the CFTR gene in the exocrine glands of the body. In this case, less
chloride ions are secreted in the glands, more sodium ions and water are
absorbed. As a result, the juice secreted by the glands becomes thick. In this,
if inflammation occurs due to the attack of bacteria like Pseudomonas, lung
diseases do not get better easily. This disease damages the lungs, pancreas,
intestines and liver.
Without listening to the doctor's explanation, we
ordinary people cannot even imagine how much suffering a child's life ends
prematurely. The child first suffers from bronchiolitis, then repeatedly
suffers from pneumonia. Later, the inner parts of the airways become wider. As
a result, the child's lungs gradually lose their function. Respiratory failure
can also occur. Children with cystic fibrosis suffer from repeated diarrhea or
oily stools, food is not digested, and the child suffers from malnutrition.
It is possible to confirm cystic fibrosis disease if
the chloride level is high by testing the body's sweat. If the disease is
detected early and treated properly, the child remains healthy for a long time.
In the developed world, their life expectancy is about
37 years. Various research articles show that pediatric chest disease
specialists in Bangladesh have been diagnosing and treating several cystic
fibrosis diseases for about 20 years.
How to understand -
1. If there is repeated shortness of breath, and
2. If the child does not gain weight according to age.
Then, if changes in bronchiectasis are found on the
chest CT scan, one should suspect - the child is suffering from a rare disease
called cystic fibrosis. Children are affected by this disease between the ages
of one and one and a half years. But the disease is diagnosed at the age of
about seven/eight years.
Regarding treatment, the doctor says -
The mucus in the respiratory tract should be cleared
through chest exercises or physiotherapy and mucus thinning medicine/mucolytic
medicine. Apart from this, treatment is done with antibiotics, pancreatic
enzymes, vitamins, calcium and other medicines.
Regular follow-up with pediatric chest disease
specialists is necessary. These children should be given high-calorie and fatty
foods. If the disease is diagnosed quickly and given proper treatment - the
child and his family can be protected from unnecessary suffering and the anxiety
of losing a family member, and a child can also hope to lead a healthy life.
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